Telling Mommy there's juice (blood)in here--see what I'm pointing to with my right finger.
Monday, January 28, 2008
Chemo #15 (3rd of Maintenance plan)--January 28, 2008
Decorating one of my hearts...Mommy wanted me to look up at her so she could snap the picture. She told me to look at the bug on her head--so that's what I'm doing in this picture. The boy across the table got a kick out of this.
Telling Mommy there's juice (blood)in here--see what I'm pointing to with my right finger.
Telling Mommy there's juice (blood)in here--see what I'm pointing to with my right finger.
Chemo #15 (3rd of Maintenance plan)...cont.
Looking for trucks and buses while the nurse is giving me my chemo.
Okay, this picture makes me look weird.
Getting my chemo.
Mommy was hoping to get a smile out of me but this was the only face I'd give her.
I passed out on the way home. I had to hold the hearts I made on the entire trip home.
Okay, this picture makes me look weird.
Getting my chemo.
Mommy was hoping to get a smile out of me but this was the only face I'd give her.
I passed out on the way home. I had to hold the hearts I made on the entire trip home.
January 2008
While Mommy was giving Makenna a piano lesson, I sat in the corner and looked at all of the books we had in our January book basket. I stayed occupied the entire time as you can see from this picture; there were a lot of books to look at.
Mommy loves that I have older siblings who love to read to me. I brought this book to Bridger and he gladly read to me.
Three of the Johnston boys posing for a haircutting picture. (Saturday, January 26, 2008)
Captain Sawyer...arrr! Grandma sent me a pirate package and of course, I had to try everything on. (Hopefully, in the very near future Mommy's going to be painting my future pirate bedroom.)
Mommy loves that I have older siblings who love to read to me. I brought this book to Bridger and he gladly read to me.
Three of the Johnston boys posing for a haircutting picture. (Saturday, January 26, 2008)
Captain Sawyer...arrr! Grandma sent me a pirate package and of course, I had to try everything on. (Hopefully, in the very near future Mommy's going to be painting my future pirate bedroom.)
Sunday, January 20, 2008
January 20, 2008
Daddy was exhausted because of my sleepless nights. He took a nap yesterday (January 19). I was playing around downstairs and then Mommy couldn't find me. After looking around the house, this is where she found me.
Picture taken yesterday-January 20! Definitely is looking better! The new port site is healing so well.
You can see how my new port kind of sticks out. This really bothers me. I pick at it all the time and try to pull at it--hoping that it will come out. I've asked Mommy to take it out several times.
One of the things Mommy "let go" when I was diagnosed was her scrapbooking. She was usually on top of this and was never more than 2-3 weeks behind. Well, now she's been months behind and that's a lot when she has 4+ scrapbooks to keep up on. Finally, this weekend she was able to devote several hours to working on scrapbooks and she's caught up on everything except for the new scrapbook she's started about my LCH journey. While she was working on scrapbooks last night, Hunter and I had a grand old time looking through our books. Hunter kept saying he wanted to jump in the book. I think he looked through his book at least 4 times!
Mommy's three boys ready for church today! I get so excited when I head to church. Mommy and Daddy just wish I'd stay in my class.
Picture taken yesterday-January 20! Definitely is looking better! The new port site is healing so well.
You can see how my new port kind of sticks out. This really bothers me. I pick at it all the time and try to pull at it--hoping that it will come out. I've asked Mommy to take it out several times.
One of the things Mommy "let go" when I was diagnosed was her scrapbooking. She was usually on top of this and was never more than 2-3 weeks behind. Well, now she's been months behind and that's a lot when she has 4+ scrapbooks to keep up on. Finally, this weekend she was able to devote several hours to working on scrapbooks and she's caught up on everything except for the new scrapbook she's started about my LCH journey. While she was working on scrapbooks last night, Hunter and I had a grand old time looking through our books. Hunter kept saying he wanted to jump in the book. I think he looked through his book at least 4 times!
Mommy's three boys ready for church today! I get so excited when I head to church. Mommy and Daddy just wish I'd stay in my class.
Friday, January 11, 2008
January 11, 2008
Mommy saw this shirt and had to get it for me. If you can't read it, it says, "BIG TROUBLE Comes in Small Packages." Warning..the next three pictures are kind of gross so beware.
Mommy was changing my bandages today and decided to take pictures of my incisions.
Touching my new baw baw.
Mommy was changing my bandages today and decided to take pictures of my incisions.
Touching my new baw baw.
January 11, 2008--Continued
Excited about the surprise package I received in the mail today-sure brightened up my day! Thanks, Tamma and Gang!
My teeth sure come in handy.
Almost 2 weeks ago Mommy read us a book called, "The Apple Doll." In the back of the book it showed us how to make our own apple dolls. We were so excited to do this. It's been so hard waiting for our apple heads to be dry enough to make the dolls. Tonight was the night we got to create. Don't you think they turned out pretty cute?! Too bad it's hard to see the details of their faces.
Hunter said his is a rock star dad holding a banjo.
My teeth sure come in handy.
Almost 2 weeks ago Mommy read us a book called, "The Apple Doll." In the back of the book it showed us how to make our own apple dolls. We were so excited to do this. It's been so hard waiting for our apple heads to be dry enough to make the dolls. Tonight was the night we got to create. Don't you think they turned out pretty cute?! Too bad it's hard to see the details of their faces.
Hunter said his is a rock star dad holding a banjo. 
Wednesday, January 9, 2008
January 9, 2008
My 20 month old bear photo. Hard to believe I was 20 months old yesterday! I'll be 2 before you know it.
Napping today--notice the milk cup--it's my constant companion.
Napping today--notice the milk cup--it's my constant companion. 
Port Surgery -- Chemo #14 -- January 8, 2008
Mommy took this picture right after I got into my gown. Crazy thing...the nurse made me put on two gowns-one in front and one in back. This was a first! (If you look at my eyes, you can see part of the eczema that has flared up again. I have it all over my head, chest, and back.)
Having my vitals taken. The nurse was surprised at how good I was.
The anesthesiologist whisking me away for surgery. She first asked if I would hold her hand and walk down the hall with her. I actually did. Mommy couldn't get her camera out quick enough to take a picture. Didn't last long, though, and soon the anesthesiologist picked me up. I was fine until we entered THE room! That's when I knew what was going on and wanted my mom. Thankfully, Mommy was right behind us and she took me.
January 9, 2008--you can see where the two sites are--the new one is the one I'm touching.
I'm still a happy boy!
Having my vitals taken. The nurse was surprised at how good I was.
The anesthesiologist whisking me away for surgery. She first asked if I would hold her hand and walk down the hall with her. I actually did. Mommy couldn't get her camera out quick enough to take a picture. Didn't last long, though, and soon the anesthesiologist picked me up. I was fine until we entered THE room! That's when I knew what was going on and wanted my mom. Thankfully, Mommy was right behind us and she took me.
January 9, 2008--you can see where the two sites are--the new one is the one I'm touching.
I'm still a happy boy!
Monday, January 7, 2008
Flashes of Hope --Photo Session--Nov. 15, 2007
Today we were able to pick up our pictures from our Flashes of Hope photo session. Daddy was out of town when we had these taken. That's why you won't see any pictures with him.
Doctor Visit--No chemo--January 7, 2007
Do you like my new hat? Someone made a bunch of these hats and donated them to the clinic. Another patient put this one on my head.
My new little kitty from the clinic.
I need a hug! Hugging my new kitty.
Sorry this picture is a little gross but Mommy wanted to show you how odd my port site looks. My scar should really just be a straight line.
Can you see the hole in the middle of my port site? The gray you see is the actual port. You shouldn't be able to see this. You can also see a bit of the port trying to push through on the bottom right side. Gross!
My new little kitty from the clinic.
I need a hug! Hugging my new kitty.
Sorry this picture is a little gross but Mommy wanted to show you how odd my port site looks. My scar should really just be a straight line.
Can you see the hole in the middle of my port site? The gray you see is the actual port. You shouldn't be able to see this. You can also see a bit of the port trying to push through on the bottom right side. Gross!
Tuesday, January 1, 2008
End of Year Fun!
On Saturday (Dec. 29) we headed to George Washington's birthplace. They were having a special Christmas celebration there. (George Washington Birthplace depicted a colonial Christmas with the Memorial House decorated for the holidays, candlelit and filled with colonial music. Throughout the day, the plantation was busy with festivities and chores performed by the Birthplace volunteers.) We loved the free ginger cookies and hot apple cider. Here we are standing in front of the Memorial House.
I loved being free to run! You can see Hunter in the trees.
I loved all the animals. We saw sheep, pigs, bulls, chickens and geese.
I love going to church! I'm always excited to put on my church clothes. Here we are getting ready to head to church this past Sunday, Dec. 30.
Today (Jan. 1, 2008) we headed down to Washington, DC to enjoy some of the museums. We were excited to walk right into the National Archives--usually whenever we pass by, there has been a very LONG line. We were even able to go to the top of the Washington Monument. Mom and Dad have been before but this was our (the Johnston 4) first time.
I loved being free to run! You can see Hunter in the trees.
I loved all the animals. We saw sheep, pigs, bulls, chickens and geese.
I love going to church! I'm always excited to put on my church clothes. Here we are getting ready to head to church this past Sunday, Dec. 30.
Today (Jan. 1, 2008) we headed down to Washington, DC to enjoy some of the museums. We were excited to walk right into the National Archives--usually whenever we pass by, there has been a very LONG line. We were even able to go to the top of the Washington Monument. Mom and Dad have been before but this was our (the Johnston 4) first time.
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